Life has been so good, and Russell's health issues have been on the back burner as we wait for follow-up appointments in August. If you've missed us, that's why we haven't written. It's felt so good to have a break from our every-other-month doctor appointments. We have had a small hiccup recently. Not too worrisome, but enough that we have doctor appointments anew in one week.
Last week at Russell's appointment, the PT and I were looking at Russell's chest and noticed that he has a rib hump in the front. He's never had this before-his rib hump was in the back when the scoliosis was starting. I called Shriner's and they are getting us in next week to see the Dr. They (and I) are suspecting that his nighttime brace may be causing this, so he has not worn his night time brace since then and they are possibly going to fit him for a new one. I am nervous about getting a new one because of the damage this one did-he also hasn't been sleeping at night and I wonder if this is also caused by the same brace-so I'm going to try to be proactive and discourage it. Yet, I know the doctors know more about this than I do, so we may come home with one anyway.
The PT has also been getting increasingly concerned about his toe-walking, and thinks he might need leg braces too. I personally don't see it as that bad, but we're going to a pediatric neuro rehab doctor next week (in Utah too and on the same day) to get his legs looked at. I'm grateful our PT is so proactive and that she's looking out for him really well, that is one thing I love about her. However, this time, I'm hoping to find out this was an unnecessary alarm.
