Our Journey through Progressive Infantile Scoliosis: Results of biopsy and LP

Friday, November 15, 2013

Results of biopsy and LP

We got the rest of the results yesterday from Russell's muscle biopsy and LP. The LP was to test the neurotransmitters, and it came back as totally normal. (Yay) The biopsy was positive for Vasculitis, which is inflammation of the blood vessels. Vasculitis is just a symptom of whatever it is that he has. But it helps us to go in a better direction, hopefully. We'll find out more about this at our appt. with Dr. Swobodo at PCMC in December. I prayed so hard for this testing to find something, and I'm so grateful that our prayers were answered. Thank you for all your prayers too.

2 comments:

Linda said...: As always, Thanks for keeping us informed. We look forward to more info - and to more hugs from that sweet boy!; November 16, 2013 at 11:45 AM
Belkycita said...: Wonderful news.
We love you all.; December 15, 2013 at 2:09 PM

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How Our Story Began:

Our son, Russell, was diagnosed with PIS in July 2011, when he was 9 months old. His curve progressed from 11* to 45* in October, with a 45* RVAD. We were initially told by doctors that he would be in a brace until he turned about 15, when he'd begin having multiple surgeries, and possibly spinal fusion. By that age, the damage (from the limited chest cavity space) to his heart and lungs would be permanent. We then had an appointment at Shriner's hospital in SLC, UT, where they told us about Mehta Casting and referred us to ISOP (Infantile Scoliosis Outreach Program). Mehta Casting is method of serial casting applied while the child is still young to use growth as a corrective force for the spine. There is a possibility of cure with Mehta Casting that is begun before age 2.