Our Journey through Progressive Infantile Scoliosis: marathon

Wednesday, January 23, 2013

marathon

Russell has been stuffing his face with all food in sight pretty much nonstop since 9am this morning. It's now 11:30am. I've never ever seen him do this before. Ha ha...the power of prayer! Thanks everyone!

3 comments:

Cheryl said...: Yay!!! Such great news!; January 23, 2013 at 12:01 PM
Belkycita said...: Wonderful!; January 24, 2013 at 11:55 AM
Meg said...: Yay!; January 27, 2013 at 8:04 PM

How Our Story Began:

Our son, Russell, was diagnosed with PIS in July 2011, when he was 9 months old. His curve progressed from 11* to 45* in October, with a 45* RVAD. We were initially told by doctors that he would be in a brace until he turned about 15, when he'd begin having multiple surgeries, and possibly spinal fusion. By that age, the damage (from the limited chest cavity space) to his heart and lungs would be permanent. We then had an appointment at Shriner's hospital in SLC, UT, where they told us about Mehta Casting and referred us to ISOP (Infantile Scoliosis Outreach Program). Mehta Casting is method of serial casting applied while the child is still young to use growth as a corrective force for the spine. There is a possibility of cure with Mehta Casting that is begun before age 2.