Our Journey through Progressive Infantile Scoliosis: more rescheduling

Wednesday, January 9, 2013

more rescheduling

We had to cancel Russell's EMG at PCMC next Monday, because he's got a really bad cold with a cough. He seems to be doing better today, but the last couple of days got me a little worked up because he coughed so much. He actually slept through the night last night though, and today seems to have more energy.

The new date for the EMG is Feb 25. That's really good, because he's going in for his next cast at Shriner's in just a few weeks, Jan 29. (Yes, we finally got that rescheduled too. Yea! :) ) I am glad he won't be getting the two anesthesia procedures closer than that. Now if we can just get him healthy, and keep it that way...

1 comment:

Linda said...: Are you okay postponing the emg? We're praying for all of you; thanks for keeping us informed.; January 9, 2013 at 8:54 PM

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How Our Story Began:

Our son, Russell, was diagnosed with PIS in July 2011, when he was 9 months old. His curve progressed from 11* to 45* in October, with a 45* RVAD. We were initially told by doctors that he would be in a brace until he turned about 15, when he'd begin having multiple surgeries, and possibly spinal fusion. By that age, the damage (from the limited chest cavity space) to his heart and lungs would be permanent. We then had an appointment at Shriner's hospital in SLC, UT, where they told us about Mehta Casting and referred us to ISOP (Infantile Scoliosis Outreach Program). Mehta Casting is method of serial casting applied while the child is still young to use growth as a corrective force for the spine. There is a possibility of cure with Mehta Casting that is begun before age 2.